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CENTER FOR
OSTEONECROSIS RESEARCH & EDUCATION
OUR
OUTLOOK |
Where are
we now?
- An
established academic center for the study of osteonecrosis
- A
recognized resource to patients and physicians for information
pertaining to osteonecrosis
- Coordinator
of multi-center projects
- A
website for the center is located at med.jhu.edu/avncenter
- Maintaining
a registry and database of patients with osteonecrosis
- Positioned
to help coordinate activities of ARCO in the U.S.
Where
do we want to be during the next year?
- Work
with the National Osteonecrosis Foundation to provide educational
materials (e.g. brochure) for patients
- Work
with existing foundations and society to increase the availability
of information on osteonecrosis on the internet
- Continue
to organize multicenter studies
- establish
standardized data collection practices
- Complete
several multicenter projects to position ourselves as a reliable
coordinator for possible future funding
- Initiate
and complete a Coagulation factor study with other MDs.
- Identify
a project area that would be attractive to funding by NIH
or pharmaceutical companies
- With
the foundation, begin preparation for an open meeting on AVN
- Identify
possible sponsors
Where
do we want to be in the next five years?
- Establish
additional outside funding sources
- Coordination
of multiple multicenter projects
- Explore
new areas in patient and physician education
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